They say “too many cooks spoil the broth.”  We hope to hell #1 that 20+ doctors are not too many and #2 that hospitals and kitchens are in no way comparable.  Now that Nyel’s care is being fine-tuned for possible discharge, we are eagerr for all of his caregiving teams to agree on next steps.

In general, everyone wants him back on the dosages and protocols that he was following before coming into the hospital.  But, of course, his body has undergone changes — loss of bone (and height!), increased degrees of heart failure and kidney dysfunction, etc. etc.  In addition, his blood pressure is not coming up as “they would want” and how to address that problem is one of many other “details” under discussion.

At best it is nuts-making.  At worst it is terrifying.  Who to listen to?  Who to believe?  Is it the doctor with the charming bedside manner who is most interested in Nyel’s comfort?  Is it the doctor who judges everything by the numbers (and believe me, there are dozens of them that they look at before and after every bit of input, output and putt-putt!)  Or is it the doctor who seems to feel experimental — sort of the do-this-and-wait-and-see approach?

And, of course, there is the most basic of all considerations — how does Nyel feel?  Today — not so good.  Not nearly as well as he felt yesterday.  Again, everyone weighs in with a different idea as to why.  Fortunately, opinions are somewhat limited as it’s Sunday and there don’t seem to be as many doctors on duty.  Or maybe they are out celebrating Cinco de Mayo.    I surely wish we were!